This is a way for us to update everyone of what is going on with our daughter and her struggle with Alveolar Capillary Dysplasia with Misalignment of Pulmonary Veins (But we thought she had Pulmonary Hypertension) .. She is now waiting for us in Heaven and we can't wait to see her one day, we love & miss you our Baby Mama!
Monday, February 7, 2011
Family Update 1: It's Been 1 Week
I would have to say that I can't believe a week has passed already. I guess with all the memorial arrangements, having to pack up all her stuff and getting things in the house moved around one does tend to lose track of time .. half the time I don't even know what day it is. Still with all this going on I do still feel like I'm missing something, like I've misplaced something really important and I just can't seem to find it! It's how I explain how I feel about Eowyn not being here, the only way I can share with you how it feels to not have her here anymore .. My life feels less hectic, like I have so much more free time. I guess thats what happens when you don't have to drive to Loma Linda everyday, your time just gets freed up. I would have to say that not having Eowyn here, as in this house, isn't what feels odd to me. She hasn't been home in so long that I'm used to not having a baby here, what's weird to me is not driving to Loma Linda to see her everyday. Not driving up Lambs Canyon, getting on the 10W freeway, complaining about all the crazy drivers (and no I'm not one of them), exiting at Tippecanoe and driving up the street to the hospital, trying to find a parking spot (which is near impossible and something they should really work on fixing) then going inside and waiting for one of the only elevators that work (something else they should fix) and finally getting to the 5th floor, walking through the double doors and seeing all the nurses, RT's and doctors that I've grown so close to .. Men and women who have dedicated there tie to taking such good care of my daughter, people I trust. They are apart of my family now and they have known Eowyn just as long as anyone else has, these are the things I miss, the things I feel weird not doing on a daily basis. It also feels weird not being able to see my daughter, to hold her hand, even not seeing her Trach is weird for me .. So many things that I got used to doing and seeing and now it's all over. I know there's an adjustment period for everyone and this one is going to take a bit more time to get used to but I can't help but be joyful at the same time .. It's almost like God has held back my tears for the last few days and replaced it with Joy. Joy in knowing that Eowyn is in His arms and she is made perfect and even though I miss all those things I just listed I'm also thankful I don't have to do them any longer because it means that she's no longer in pain, she's no longer suffering, everything that was keeping her there at the hospital is now gone, like a vapor! She ran the good race and God called her home, as much as I miss her I'm also so very proud of her. In the short amount of time she did have here on earth she did a great work for the body of Christ and that is something to smile about .. One day I'll be able to tell her how proud of her I am face to face and I'll give her the biggest hug ever! I miss her so much and I'm not sure when the felling I have of something being misplaced will go away but I lean on God and He keeps me going one step at a time. Thank you all for your prayers for our family, we need them.
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"The LORD will give strength to His people; The LORD will bless His people with peace" Psalms 29:11
ReplyDelete"And He said to me, "My grace is sufficient for you, for My strength is made perfect in weakness." Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me." 2 Corinth 12:9
"Those who sow in tears Shall reap in joy." Psalms 126:5
"You have made known to me the ways of life; You will make me full of joy in Your presence." Acts 2:28
I've been praying for you that you and your family will find your strength and joy in the Lord even through this rough time. And when I read your blog just now, its like you are speaking lines out of the Bible, that you feel the way you do is amazing and so hopeful, so inspiring to see!! I will continue to keep you all in prayer as its a struggle every new day, but just find rest in knowing the Lord is holding you up even when you think you can't stand anymore...God is so good!!
Hi Caleb, this is Rosemary (Jon's Mom) My tears run freely as I have read this. I am not much of a computer person, but Chrissy tries to keep me on track. I just want you to know that you are all in my thoughts and my prayers and give your mom and dad a hug for me too. I so wish that I could be there Friday, but life is going on here. Hi Autumn, I don't believe that we have ever met, but it reading your thoughts is good. I praise God for your strong faith and I will keep you both in my heart. We all love Caleb he was a little like part of our family. It is good to know that our God is Alive and that heaven is a very real place. I believe that having someone there makes it a little closer to heart. I have also heard and felt that a times like these the peace of God is amazing...May many come to know Jesus better through her memorial service on Friday. May His Blessings be upon you all.. Much Love, Rosemary Giauque
ReplyDeletehi... this is Pauline... i was the student nurse that helped that care of baby Eowyn.. i wanted to see how she was doing and wanted to visit you guys if she was still in the hospital.. but to my sorrow.. i found out that she passed away. I am so sorry and so sad to hear this. words can really describe how i feel but i feel very honored to have helped to take care of her. I have learned a lot of the joys and sadness, highs and lows of nursing, and through this, i realize how much care these little babies need. not only to treat the disease or to find a cure, but to make them happy and painfree. i dont know where i am going, but i know that baby Eowyn loves and thanks you and dad for being able to experience such great parents.. it was not for only 4 mos because she will be waiting patiently with God until the day that we all reunite...
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